Saturday, May 21, 2016

Family Updates

Sand cherry blooms
Thank you so much, for all of the emails, calls and comments, of prayers and encouragement, for our family over the last many months.  With such a large family, we always seem to have a few pretty serious things going on and always appreciate being held up in prayer.  Thank you and Gods many blessings upon you all for it.

I am going to do one big update post, to answer some of the asked questions and will start with Tim.  He was diagnosed with stage three kidney failure several months ago.  His second blood work showed a bit of improvement.  He has been on medication to neutralize his blood acids to make it easier on his kidneys and is on a VERY restrictive diet.  The diet has upset his Addison's Disease quite a bit but seems to be leveling out again.  He had an appointment with his kidney doctor recently and Glory to God his kidney numbers continue to improve.  He is now one point away from being moved from the critical stage three to stage two.  We are very excited and praise God for this improvement.  The doctor does not want him to change anything he is doing right now, to try to get even better numbers.  The bad thing is, Tim has lost a huge amount of weight and is very thin and tired all the time now, even weak, if he does to much.  If he is moved to stage 2 failure, he will be allowed to eat a lot more foods, with more calories in them and it will greatly benefit his weight issues.  Please pray that Tim;s kidneys will continue to improve, he will gain in strength and energy and will put some much  needed weight back on.  He is still able to work and drive.  I try to have everything done around here when he gets home from work, so he has little to do but relax and enjoy the family.  God is so good and we are so excited about the improvement in numbers.

Our son Stephen is doing very well.  He has lived in an apartment since moving out on his own eight years ago.  He has decided he would like to move this year and buy a condo or small home.  He has been sending me many links of homes he is considering and it has been fun to go over some of them with him.  He should be moving to his own home very soon!

Antonio is doing well.  He had the botox reaction ten months ago now.  He was paralyzed for several months from it and has had reoccurring issues from it all.  He will do well for three weeks or so and then relapse.  Praise God he has had no major episodes in the last two months.  He is still not back to how he was before the botox poisoning so we are beginning to think this is Antonio's new normal.  He sleeps during the day a lot more than he did.  He is also  not as strong as he was.  He is still a happy young man but has many days at a time we do not see his huge smile, is quite and not as talkative as he has always been.  All in all we are so grateful to be over the horrible regression episodes and thank God that Antonio is ok and doing better in his health now.

William is still going to the local college GED program.  He has completed and passed three sections!  Only math to go!  He is still having health issues.  We finally had his genetics appointment that we waited almost a year for.  He will now begin a long series of test to try to get to the bottom of it all.  We are so grateful.  It will hopefully get us the diagnosis and help we need for him.

Carolyn is doing very well.  She is busy with ballet, helping me, doing schooling and trying to learn to crochet.  She is still my right hand girl and such a big help with the little ones.  She loves working with them and is so good at it.  They all love her as well.  Her new little dog, Bella, is doing well and brings her great happiness.

Zeke is doing very well in school.  His behavior has been a bit erratic at home, from so much back and forth to school and lack of routine while there but he has behaved well at school so I cant complain.  He participated in the local Special Olympics this year and went to the dance afterwards.  He was so excited about it and did great.  He got three ribbons, One second place and two third place.
Elizabeth is doing very well with her home schooling this year.  We changed a lot with her schooling this year and Praise God it has been a good fit for her.  She has for the first time finished her whole math book for the year and is accomplishing a lot of work each week.  She is nervous about her up and coming surgery as she has not had a surgery since she was eight.  She does not remember what it is like to go through a surgery and recovery.  We are making every concession to prepare her and make her feel comfortable with it as we can.

Billy loves dill pickles.  Tim found this huge dill pickle and got it for him as a surprise.  This is his sour pickle smile.  :)
Billy is doing very well.  He still struggles with his behavior and being nice to others but over all he is much improved.  He was recently discharged from Physical therapy, occupational therapy and feeding therapy!  I never thought we would get to the day he would self feed but here we are!  He is feeding himself with verbal promps, to keep putting food in his mouth and to keep chewing.  I no longer have to feed him every bite, every meal!  He is a very smart little guy and doing well with our home schooling.  He is a joy to teach and I love the deep, well thought out questions that he asks, all day long.  He is never still and rarely quiet!

Timothy is also doing well with is feeding and has been discharged from feeding therapy.  I think because he was younger when he came here, that he started self feeding faster and I don't have to remind him to chew all the time.  He will need PT and OT therapy for a good bit longer as he has autism and far from where he should be in those areas.  He has started to put several words together and is paying more attention to the world around him.  I recently had to put him back on the dairy free/wheat free diet because of his behaviors and now he has settled down again.

Kinsley is doing very well.  She was tested a few months ago and tested as a two and a half year old and she was not even two yet!  She is very smart but has almost no words to communicate with.   Language is very hard for her.  She understands everything we say but speaks to us in sign language.  She is progressing in language but it is very slow going.  She can say ma ma, da da, Peppa, Blue and she just started saying up and purple.  She is having to memorize every word individually, which will take time.  She will be starting vision therapy soon, to help her learn to navigate her world, with her vision issues.  She is still in PT, OT and speech therapy and will be in them for a while.

Please keep my health in your prayers as well.  God is so good and I believe He has a plan for us and for our future, to bring us peace and not evil, to bring us an expected end.

May the Lord God of Israel, Maker of heaven and earth and all that is there in, pour out his abundant blessing upon you as you live and grow in Him.

Jeremiah 29:11  For I know the thoughts that I think toward you, saith the Lord, thoughts of peace, and not of evil, to give you an expected end.




  1. Yes! We have been praying! Oh my so much going on, I know exactly how you feel. Except here my health is poor and Tom's is good!
    How exciting for Stephen!! We saw the geneticist with Mercy. I pray yours goes as well as ours did! :o) That you get answers.
    Good job on the school work Elizabeth!!
    Billy and Timothy are so cute- the County won't let us change Gideon's diet. He eats sugar all day long. :o(
    Carolyn is such a beautiful young lady! (Elizabeth too :o) Oh my seeing Zeke run is fantastic! He is growing up too fast now with all of these big people activities!! William reminds me of my Isaiah- always there when you need him. What a wonderful young man!
    How is baby A??
    ((((HUGS)))) and more prayers

    1. Thank you Elizabeth for the prayers. We always need them. We pray for you all as well. I know you need them too! God is so faithful and good to us always. Much love and many blessings!

  2. It looks like Zeke is in track. I was in track as well and did very well. I loved it! I hope he enjoys it. I didn't know your husband has Addison's disease. I have been reading about it quite frequently with reading about the adrenals. Does he have to take hydrocortisone for it? Anyways, I'm sorry for the troubles with his kidneys on top of this. : ( Antonio, when I see him I feel sad. I'm sorry that he has not returned back to normal. He still shines a beautiful smile though. I hope Steven found a place that his is happy with... I'm glad the other kids are all doing well. Let's hope Momma is doing well too! : )

  3. Zeke was in the special Olympics and did very well. He really enjoyed it. Tim almost died back in 1999 and was on life support before we found out the reason for his slowly dieing was Addisons. God graciously spared his life. He has to take cortisone every day or he will die. God is so good to us and has brought us through so many hard times in life. He is faithful. I will serve no other. Pray all is well with you and yours! Blessings!