Saturday, July 19, 2014

If The Calendar Does Not Lie...

We had an amazingly busy week.  I knew it was coming.  It was on the calendar for quite some time.  I was dreading it.
 
It was the week of Williams Drivers Ed class.  He had to be there by 8:00 a.m. every day and picked up by 4:00 p.m..  Getting him there would be almost impossible but Tim could pick him up.  I would have to get up and get Antonio toileted, bathed, tube fed and dressed.   The milking done in the barn and barn chores done.  The toddlers up, fed and bathed. My other children gotten up and around and baby "K" up and bottle fed, which takes about an hour.  (She is a very slow nurser.)  I would have to do all that and probably more I forgot and out the door by 7:30 a.m. to get him there by 8:00 a.m..  I would have had to get all of us up by 5:00 or so to get it all done, us all working hard and fast together.    I am so very grateful to my dad for volunteering to take William for me.  Dad took him Monday, Tuesday and Thursday for me!  I did it Wednesday as I already had to be in town for some appointments and wow, it was ruff.  I would be sleeping now and not typing if I had had to do that routine every one of those days.  Thanks so much Dad!!

The one thing I was looking forward to about this week?   I was hoping it would give me a glimpse into what it was going to be like when and if William goes into a program to further his education or gets a job.  I needed to see and feel what it was like for him to not be here as he helps me so much every day.  Wow... Thank you God for William for all he does around here.  God helped me every day do everything but it was much harder without him here.  I want William to not be held back by me needing him here so this was a good test run.  It was also a great opportunity for him to see what schooling would be like.  He has been home schooled his whole life.  So, having to be to a class on time, being in a class where you sit in hard seats and have to crank out information and take notes was very good for him.  He came home very sick on Monday from the stress of it being the first day but did better every day he went.  So this was a good thing for us all to go thru this week.  On Wednesday, when I pulled up to the huge high school the class was held at and dropped him off with his lunch and back pack, I had the feeling like when you drop your kindergartener off the first day of school.  So funny!

I learned that God is with me always and will help us to get every day done.  I will need to make some changes around here to make things go smoothly without him here but God will help us with life and all it demands. 

William learned he can do this (school, job or anything life brings).  That even though he had to step way out of his comfort zone and it was very stressful, God helped him and he did great.  He kept up with typical young people, his age, in a main stream Drivers Ed class and not only passed but did well.  Thank you God!  Great job William!!  He has two days of driving with a driving instructor next week and then will get his Certificate of Completion.  Then he can take his test to get his drivers license.  Yippee!  Another milestone met!

We had many appointments this week as well.  The biggest one for William on Friday.
Actually the room kinda looked like this...
And this...
And this... His wheel chair only fit in the room one way with all of us in it so he had to look back to see us all.  Bless his heart.

The test results do show William has the beginning stages of Addisons.  That is not the greatest news but we have been praying for answers, so it is what it is.  The good news is, now he can get the treatment and medication he needs to help him feel well again.  Praise God we have an answer.

We had an appointment for baby "K". 
See how chubby she is getting!  I love it!  I hate blocking out the children's sweet faces.  Hopefully some day I wont have to do that anymore. 
I thought she had bronchitis but the doctors think she is aspirating on her formula.  So she has a swallow study next week.  She has very low tone and is very laid back and quiet.  They think her muscle tone is weak everywhere, including the muscles that keep the formula down and I already know she has a very weak suck as it takes her so long to nurse.  She fatigues very easily.  She also gulps air when she swallows. So after this study we should have a few answers with her.

We had an appointment for "T". 
The test came back that he does not have Celiac Disease but he seems to be gluten sensitive.  So he is now on a dairy free/gluten free diet.  Hopefully this will clear up his diarrhea issues.   He has always been on the crabby side since he came here.  We tease and say he is crabby but cute.  He just was always walking around fussing unless being held.  Not totally happy on his own all the time.  That has changed already since changing his diet.  I think these tummy issues were bigger than we all thought.  He is happy now and seems to be walking better and thinking more clearly.  So, I pray this helps him.  We have had Zeke on a casin free/gluten free diet for years but it still is not a fun way to eat.

So now if the calendar is correct...if the calendar does not lie... and we have no surprise appointments pop up, we will be back to our normal four or five appointments a week again and things will be slower and more predictable again for a few weeks.  Thank you God!

I pray your summer is going well and greatly blessed!

Psalm 150:1-6  Praise ye the Lord. Praise God in his sanctuary: praise him in the firmament of his power.

Praise him for his mighty acts: praise him according to his excellent greatness.
Praise him with the sound of the trumpet: praise him with the psaltery and harp.
Praise him with the timbrel and dance: praise him with stringed instruments and organs.
Praise him upon the loud cymbals: praise him upon the high sounding cymbals.
Let every thing that hath breath praise the Lord. Praise ye the Lord.


Blessings,
susan 

4 comments:

  1. Antonio just steals my heart! What a doll he was in those pictures! What a beautiful young man! Our Molly (in a wheel chair) from Korea who passed away at 27 in 2010 was tiny when she came too. She was 5 and 22 pounds. Of course Mosie beat everybody for tiny- but that was from extreme poverty. Sweet Molly never grew above 80 some pounds. At the end I couldn't lift her, but Tom still could. She was always Daddy's girl! :o)
    Beautiful post! God WILL ALWAYS provide! AMEN! I have a few adult kids who tell us why we can't do what we do, and I hear God laugh.
    (((((((((BIG HUGS)))))))))) I read so many blessings here, it brings JOY to my heart!

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  2. Wow eliz, Molly was super small when she came. I can see she thrived in your care. Very beautiful and well proportioned as a young lady. What a blessing it sounds like she was. Antonio is just the sweetest young man. Always brings happiness and joy. He weights 120 pounds now and I can not push him up a ramp in his wheel chair or go down one with him. He and his chair get away from me and drag me down the ramp! He is a big guy now. I can see why everyone loves little Mosie. Sweet and tiny little guy but now he looks healthy! You are so right! God is always so good and always provides all we need in every way. From health to strength to provisions. I am forever grateful. Thank you as always for the encouragement! Huggin you right back from the North Georgia Mountains!

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  3. I know I read and commented on this yesterday but it must have been lost in cyberspace. I am so glad (as I am sure you and T are as well) that you seem to have worked through his digestive issues. Poor guy. It is really hard to do anything with a messed up digestive track. I love seeing chubby baby thighs. Someday I am sure we will see the sweet face that goes along with those thighs. :-)

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    1. Yes, T is doing so much better. He is not fond of the gluten free diet but it has made a world of difference. Glory to God! His behavior is even better but I bet he just felt so puny it made him act out. Thanks for all the encouragement always, Blessings!

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