So here we are…….back to the topic of my wonderful daughter
Elizabeth. I love her dearly and have
worked harder, prayed harder, cried more, re-evaluated myself and our rearing
techniques more with her than any other child I have ever raised. For the first three years of her life she was
not very stable in her health. Her care
was 24/7. Suctioning her trach,
breathing treatments, tube feeding, oxygen.
Frequent hospital stays, surgeries and throw in there foster care
related, visitations and court dates. It
was busy and stressful to say the least.
My emotions and body was on high alert for years. On top of all this I still had several other
children with special needs in our home that needed myself and my husband. Those were some extremely hard years.
As Elizabeth began to stabilize, get healthier and stronger,
her personality began to emerge more.
Even though she is a cutie pie and I love her, her personality was not
pleasant, sweet or wonderful. I have
always tried to give her more grace than my other children as she had many
painful things she went thru that we could not pick her up and comfort her thru
because she was hooked up to many life saving pieces of machinery. Our love, prayers and physical touch was all
we could offer. Also I had nursing come
into our home for several years. As I
had things I had to do, like sleep! Seriously
though, I had a house hold to run and other children to care for. So had nursing to give me extra hands. A person to suction her as I drove
places. It was for safety
sake. So she did not always have me
doing all of her care day and night. We had many different nurses helping us thru the years we needed them.
Those things I think greatly played into her
emotions and ways she acted out. Because
of the way her life was in the beginning, thru no ones fault, it is the way it
had to be. Even though we had her with
us since 12 weeks old, I was with her thru every hospital stay and sickness and
did much of her care……she still developed issues from it all..Some people would
call the way she has attached to us as RAD.
(Reactive Attachment Disorder). This
is something I never wanted to work though with a child in my life. Something I
never expected.
Her behavior issues peaked at about age 6. We hardly ever had a break from her several
times in a day tantrums, acting out, meanness toward the other children and
horrible things she said…she had no conscious when she did something wrong….it
made her happy and gave her great joy, even if she got punished, it didn’t bother
her…....daily…..all day long for about three solid years.
(At the aquarium with my nephew)
The other children stayed clear of her. Didn’t want to be around her. Never wanted to play with her, sit by her in the van or at restaurants. She had to act out and ruin every happy family event we tried to plan. It was emotionally exhausting.
(At the aquarium with my nephew)
The other children stayed clear of her. Didn’t want to be around her. Never wanted to play with her, sit by her in the van or at restaurants. She had to act out and ruin every happy family event we tried to plan. It was emotionally exhausting.
When she turned 9 years old, I was at my end. I felt so down hearted and discouraged. I didn’t want to get up in the mornings to “deal
with her” all day. I fell into bed
exhausted and beaten at night. I wanted
to put her in public school but I knew
that would just make the troubles worse.
She would behave for no one and that certainly would not help our relationship. To be honest, I felt trapped thinking that I
might have to go thru this daily for the rest of our lives. I saw little to no change in her behavior no
matter what we tired or did.
Some days my husband would come home from work and I would collapse crying into his arms unloading my days events with Elizabeth. I would then retreat somewhere with the rest of my children and let Tim work with her till bed time. I was just spent. It was all greatly affecting my health. Something had to change. I prayed and cried out before God like I never had before.
Some days my husband would come home from work and I would collapse crying into his arms unloading my days events with Elizabeth. I would then retreat somewhere with the rest of my children and let Tim work with her till bed time. I was just spent. It was all greatly affecting my health. Something had to change. I prayed and cried out before God like I never had before.
That’s when God showed me that what she was doing….her
relationship towards me, was the same as many people’s are toward God. It is the way my life and attitude was
towards God and His law before I got saved.
Yet He still draws us. Gives us
many chances. His mercy is new every
morning and His grace is sufficient. I
was putty in Gods hand. Broken. I was ready to go at it all again renewed in
my heart by God. Ready to remind myself
every morning to give her a fresh start and new day. To not take her attacks personally. That I loved her and we needed to work thru
this together. As a family.
God showed me many new things to try. I was to be the person there for her from
meals to self care. To work on our
relationship in a positive way separate from her behavior or how she treated me
that day. (hard one) To pray with her daily about her
behavior. For the first time I saw
sorrow and she would often cry as she asked God to help her to have a good
day. She would often cry when telling
God she was sorry for how she acted towards others. I was to not get angry and show her love even
thru her being disciplined. To explain
to her to the smallest detail what she was in trouble for and why it was wrong
and why I was having to correct her for it. (to ask her how she would feel if
what she did was done to her) I showed
her stories in the bible that pertained to her sin and behavior. To overly reward her for the smallest
kindness and good behavior with hugs, attention and love. That when I disciplined her, to only do it for
that day. Before this time, for
everything she did that was terribly wrong I would take away things often even
an event many days away like movie night taken away. In her mind she had nothing to look forward
to as everything was always taken away. She
needed to feel reward and success often so she would want it to continue.
At first we took it only a section of the day at a
time. If she started out badly and had
something for that day taken away. I
would tell her it was taken away but if she was good the rest of the morning
she could “earn” it back and this worked!
Also to only discipline for the worst of her behavior and let the other
things slide and work on them later.
We started having “good days” here and there right from the
start. Every good day encouraged me to
keep to the new way God had shown me. Then
we started to have mostly good days. She
would only have one or two hard days a week.
Then she started to have only a tantrum once in a while but could
maintain being good the rest of that time and day . It used to be if she blew it, she would just
figure she could act out the rest of the day as that day was shot anyways as
far as behavior.
So…..The last post was a wonderful post about the girls
ballet recital and all the wondrous feelings and happiness that God has blessed
us with concerning them. It was true and
I feel every bit of what I wrote. What I
will share with you now is Elizabeth’s the “day after” a big event.
It is one of those “bad” days that we still need to watch
for, and try to avoid. As she gets so
much attention and happiness on a big day when something extra exciting and
special is happening. That for some
reason the next day. The “day after” she usually has a very hard and bad day
regulating back to reality. And so this
is exactly what happened the day after the recital. She had not had a tantrum in a long time and
had three on Thursday. She verbally lashed
out at everyone around her all day and had a really hard time reeling in her
emotions. Praise be to God these days
are few and far between now. Still not
easy to handle and not any less frustrating.
As soon as Tim walked in the door I said “tag team, your it” and he took over for the rest of the
evening. I went outside and weeded the
garden. Ahhhh.
Anyways, she was back to her normal self again by
Friday. Glory to God! I am so happy to call the good days her normal
now instead of the other way around. :)
May the Lord God in heaven give you the answers you are
praying for, help you thru those hard days and bring you to those precious
happy days on the other side. That He
will give you the help, strength and guidance you need as you work thru life
and its struggles.
God be with you,
susan
Yowza! Poor Elizabeth! Poor Susan! Hugs, prayers and I know you will make it through.
ReplyDeleteThanks so much Julie. I appreciate it so much.
ReplyDelete